Six Friends

ORGANIZATIONS AND SUPPORT GROUPS


Click on a letter of the alphabet to go to that part of the list.

A B C D E F G H I J K L M N O P Q R S T U V W X Y Z 

I have tried to list here support for people with conditions which include visual impairment, and support for all types of disabilities. Syndromes which do not include visual impairment may have been left off this list, but they can be located by searching on the internet.

Click here for Christian Organizations and Support Groups.

Note: The groups which follow are secular.  Sports organizations are listed in the department Sports, Arts, and Recreation.


Academy for Certification of Vision Rehabilitation and Education Professionals [ACVREP]
 mail: P.O. Box 91047, Tucson, AZ 85752-10047 U.S.A.
 internet: http://www.acvrep.org/
 e-mail at: info@acvrep.org
 fax: 520-887-6826
voice: 520-887-6816

Provides professional certification in these disciplines: Orientation & Mobility Specialists, Rehabilitation Teacher, Low Vision Therapists.

Action Group for Children with a Disability
mail: 19B William Street, Richmond, Victoria  3121  AUSTRALIA
internet: http://www.vicnet.net.au/vicnet/community/agcd/agcd.htm
voice: 9427 0827, 1800 654 013

Aicardi Syndrome Foundation
mail: 450 Winterwood Drive, Roselle, IL 60172 U.S.A.
internet: http://www.aicardisyndrome.org
e-mail: aicardi@aol.com
voice: 800-373-8518

All Blind Children of Texas
internet: http://www.abctx.org

Alliance for Parental Involvement in Education, Inc. [AllPIE]
mail: P.O. Box 59, East Chatham, NY  12060  U.S.A.
internet: http://www.croton.com/allpie/
e-mail: allpie@taconic.net
voice: 518-392-6900

Distributes information on public, private, and home schooling.  Has a mail lending library: parenting, special education, options.  Has a yearly conference.

Alliance of Genetic Support Groups
mail: 35 Wisconsin Circle, Suite 440, Chevy Chase, MD 20815  U.S.A.
internet: http://medhelp.org/www.agsg.htm
e-mail: alliance@capaccess.org
fax: 301-654-0171
voice: 800-336-4363

Provides referrals to local genetic support organizations, sponsors national symposia, promotes prompt dissemination of new genetics information and services, and publishes resources.  Call for free brochures and publications order form.

American Academy of Ophthalmology
mail: P.O. Box 7424, San Francisco, CA  94120-7424  U.S.A.
internet: http://www.eyenet.org
fax: 415-561-8567
voice: 415-561-8500

Publishes some booklets on various eye conditions and ophthalmological techniques.  To have a booklet faxed to you, fax a request to 908-935-2761.

American Academy of Optometry
mail: 6110 Executive Blvd., Suite 506, Rockville, MD  20852  U.S.A.
internet: http://www.aaopt.org
e-mail: aaoptom@aol.com
fax: 301-984-4737
voice: 301-984-1441

American Academy of Orthopaedic Surgeons
mail: 6300 North River Road, Rosemont, IL  60018-4262  U.S.A.
internet: http://www.aaos.org
e-mail: wbhelp@aaos.org
fax: 847-823-8115
voice: 800-346-2267, 847-823-7186

American Association of Persons with Disabilities [AAPD]
mail: 1819 H Street NW, Suite 330, Washington, DC  20006  U.S.A.
voice: 202-457-8168

American Association of the Deaf-Blind
mail: 814 Thayer Avenue, Suite 302, Silver Spring, MD  20910-4500  U.S.A.
e-mail: aadb@erols.com
fax: 301-588-8705
voice and TTY: 301-588-6545

 "The mission of AADB is to assure a comprehensive, coordinated system of service accessible to all deaf-blind persons enabling them to achieve their maximum potential through increased independence, productivity, and integration into the community."

American Association on Mental Retardation
mail: 444 North Capitol Street N.W., Suite 846, Washington, DC  20001-1512  U.S.A.
internet: http://www.aamr.org
fax: 301-206-9789
voice: 301-604-1340

American Behcet's Disease Association
mail: P.O. Box 15247, Chattanooga, TN 37415-0240 U.S.A.
internet: http://www.behcets.com
e-mail: cfornabaio@behcets.com
voice: 800-723-4238

American Brain Tumor Association
mail: 2720 River Road, Suite 146, Des Plaines, IL  60018  U.S.A.
internet: http://www.abta.org
e-mail: info@abta.org
fax: 847-827-9918
voice: 800-886-2282, 847-827-9910

Publishes 20 pamphlets on various aspects the disease, including "Coping with a Brain Tumor", "Dictionary for Brain Tumor Patients", and "A Primer of Brain Tumors"; funds research; holds symposia; publishes a newsletter.

American Congress of Rehabilitation Medicine [ACRM]
internet: http://www.amctec.com/acrm
e-mail: acrm@amctec.com

American Council of Rural Special Education [ACRES]
mail: Department of Special Education, University of Utah, Milton Bennion Hall, Salt Lake City, UT  84112  U.S.A.
e-mail: ACRES@gse.utah.edu
voice: 801-581-8442

American Council of the Blind [ACB]
mail: 1155  15th Street NW, Suite 720, Washington, DC  20005  U.S.A.
internet: http://www.acb.org
e-mail: webmaster@acb.org
fax: 202-467-5085
voice: 800-424-8666, 202-467-5081

National organization of visually impaired persons and their supporters.  Has specialized divisions.  Call for information on a local chapter and newsletters of interest.

American Diabetes Association
mail: 1660 Duke Street, Alexandria, VA  22314  U.S.A.
internet: http://www.diabetes.org
voice: 800-342-2383, 703-549-1500

American Medical Association
mail: 515 North State Street, Chicago, IL  60610  U.S.A.
internet: http://www.ama-assn.org
e-mail: WebAdmin@ama-assn.org
voice: 312-464-5000

American Optometric Association
mail: 243 North Lindbergh Blvd., St. Louis, MO  63141  U.S.A.
internet: http://www.aoanet.org
fax: 314-991-4101
voice: 314-991-4100, 314-991-4101

American Occupational Therapy Association, Inc.
mail: P.O. Box 3122, Bethesda, MD  20824-1220  U.S.A.
internet: http://www.aota.org
voice: 800-377-8555, 301-652-6611

American Physical Therapy Association [APTA]
mail: P.O. Box 25278, Alexandria, VA  22313-5278  U.S.A.
internet: http://www.apta.org
e-mail: amherst@apta.org
fax: 703-706-3396
TTY: 703-683-6748
voice: 800-999-2782 x3395, 703-684-2782

National professional organization of PTs and PTAs.  Publishes books, videos cassettes, and monographs of professional interest.

American Society of Cataract and Refractive Surgery
mail: 400 Legato Road, Suite 850, Fairfax, VA  22033  U.S.A.
internet: http://www.ascrs.org
e-mail: ascrs@ascrs.org
fax: 703-591-0614
voice: 703-591-2220

American Speech-Language-Hearing Association
mail: Asha Action Center, 10801 Rockville Pike, Rockville, MD  20852  U.S.A.
e-mail: irc@asha.org
TTY and voice: 301-897-5700
voice: 800-638-8255

Free information on various communication disorders and referrals to local specialists.  Brochure Do Your Health Benefits Cover Audiology and Speech-Language Pathology Services?

American Voice Input/Output Society [AVIOS]
internet: http://www.avios.com
e-mail: avios@pilot.net

Disseminates information about speech technology, including synthesis and recognition.

ARC, The
mail: 500 East Borden Street, Suite 300, Arlington, TX  76010  U.S.A.
internet: http://thearc.org
e-mail: thearc@metronet.com
fax: 817-277-3491
TTY: 817-277-0553
voice: 817-261-6003

 "A national organization on mental retardation"

Artability
mail: c/o San Diego Rehabilitation Institute, 6645 Alvarado Road, San Diego, CA  92120  U.S.A.
voice: 619-286-7274

A consumer group of disabled artists.

Association for Education and Rehabilitation of the Blind and Visually Impaired [AER]
mail: P.O. Box 22397, Alexandria, VA  22304  U.S.A.
internet: http://www.aerbvi.org/welcome.htm
e-mail: aernet@laser.net
fax: 703-823-9695
voice: 703-823-9690

Professional organization of people who work in the education or rehabilitation of people with visual impairments.  Magazine Re:View comes with membership.

Association for Macular Diseases, Inc.
mail: 210 East 64th Street, New York, NY  10021  U.S.A.
internet: http://www.macula.org
e-mail: macula@macula.org
fax: 212-605-3795
voice: 212-605-3719

Association for Persons with Severe Handicaps, The [TASH]
mail: 29 Wst Susquehanna Avenue, Baltimore, MD  21204  U.S.A.
internet: http://www.tash.org
e-mail: comments@tash.org
fax: 410-828-6706
voice: 410-828-8274

Advocacy, newsletter, journal.

Association for Retinopathy of Prematurity and Related Diseases
mail: P.O. Box 250425, Franklin, MI  48025  U.S.A.
internet: http://www.ropard.org/
e-mail: ropard@yahoo.com
voice: 800-788-2020

Association for the Advancement of Rehabilitation Technology [RESNA]
mail: Technical Assitance Project, 1700 North Moore, Suite 1540, Arlington, VA  22209-1903  U.S.A.
e-mail: resnata@resna.org
fax: 703-524-6630
TTY: 703-524-6639
voice: 703- 524-6686

Has a credentialing program for Assistive Technology Service Providers and offers grants to technology centers, sells publications relating to rehabilitation and assistive technology issues.

Association for the Care of Children's Health [ACCH]
mail: 7910 Woodmont Avenue, Suite 300, Bethesda, MD  20814-3015  U.S.A.
internet: http://www.aach.org
e-mail: aach@clark.net
fax: 301-986-4553
voice: 800-808-2224, 301-654-6549

This is a multidisciplinary membership organization of individuals and organizations committed to improving the quality of care for children.

Association of Blind Piano Tuners
mail: 24 Fairlawn Grove, Chiswick, London W45EH ENGLAND
internet: http://www.uk-piano.org/
e-mail: abpt@uk-piano.org
 fax: 44+ (0)20 8742 2396
voice: 44+ (0)20 8995 0295

Association of Parents Having a Kid in Contacts [APHAKIC]
internet: http://hometown.aol.com/jeizzo/vised.htm

Association of the Blind and Amblyopeds of Portugal [ACAPO]
mail: Rua de S. José 86-1 , 1100 Lisboa  PORTUGAL
fax: 351-1-342 85 18
voice: 351-1-342 20 01

Ataxia Telangiectasia Research Foundation
mail: 344 Copa de Oro Road, Los Angeles, CA 90077 U.S.A.
voice: 213-476-1218

Autism Society of America
mail: 7910 Woodmont Avenue, Suite 650, Bethesda, MD  20814  U.S.A.
internet: http://www.autism-society.org
fax: 301-657-0869
voice: 301-657-0881

Bartimaeus Alliance of the Blind, Inc.
 mail: P.O. Box 572, South San Francisco, CA 94083-0572 U.S.A.
 internet: http://thegems.shellworld.net 
 e-mail: thegems@shellworld.net
voice: 650-589-6890

Batten Disease Support and Research Association
mail: 2600 Parsons Avenue, Columbus, OH  43207  U.S.A.
internet: http://www.bdsra.org/
e-mail: bdsra1@bdsra.org
voice: 800-448-4570

California Transcribers and Educators of the Visually Handicapped [CTEVH]
mail: c/o Braille Institute of America, 741 North Vermont Avenue, Los Angeles, CA  90029  U.S.A.
internet: http://edtech.sdcs.k12.ca.us/epd/ctevhhome.html
voice: 213-666-2211

Organization of teachers, visually impaired persons, braille transcribers, and parents.  Holds a yearly conference, one of the largest in the U.S.A.  CTEVH Journal publishes changes in the braille codes and reviews of braille-production software.  Has a newsletter for students in grades 11 and 12 Access.

Canadian Foundation for Aniridia Research [CFAR]
mail: 3780 Verdun Avenue Suite 2, Montreal, PQ  H4G 1K6  CANADA
internet: http://www.aniridia.org
e-mail: cfar@generation.net
voice: 514-761-5998

Canadian National Institute for the Blind
mail: 1929 Bayview Avenue, Toronto, ON  M4G 3E8  CANADA
e-mail: lib.sales@immedia.ca
voice: 416-480-7544

Candlelighters Childhood Cancer Foundation
mail: 7910 Woodmont Aveue, Suite 460, Bethesda, MD  20814-3015  U.S.A.
internet: http://www.candlelighters.org
e-mail: info@candlelighters.org
fax: 301-718-2686
voice: 800-366-2223, 301-657-8401

"Provides education, support, and advocacy to families of chidren with cancer, adult survivors of childhood cancer, and the professionals who work with them."  Maintains a list of organizations that grant wishes for children with chronic or life-threatening conditions.  Sells a book Educating the Child with Cancer.

CARE Ministries, Inc.  [Christian Association for Rehabilitation and Education Ministries, Inc.]
mail: P.O. Box 1830, Starkville, MS  397560
internet: http://www.careministries.org
e-mail: care@careministries.org
voice: 800-336-2233, 662-323-4999

"Interdenominational organization which serves people who are blind or visually impaired and their families by providing encouragement trough prayer and spiritual counsel, providing Christian materials in accessible formats, information and referral services, technical assistance to churches,  agencies and homeschooling families."

Center for Children with Chronic Illness and Disability
mail: University of Minnesota, Box 721, 420 Delaware Street S.E., Minneapolis, MN  55455  U.S.A.
internet: http://www.peds.umn.edu/Centers
e-mail: kohen001.@maroon.tc.umn.edu
fax: 612-626-2134
voice and TTY: 612-624-3933

"The organization is a research and training center dedicated to the study and promotion of psychological and social well-being of children with chronic conditions and their families."

CHARGE Syndrome Foundation, Inc.
contact: Marion Norbury
mail: 2004 Parkade Boulevard, Columbia, MO 65202-3121 U.S.A.
internet: http://www.kumc.edu/GEC/support/charge.html
e-mail: mnorbury@mail.coin.missouri.edu
voice: 800-442-7604 or 573-499-4694

Christian Church Foundation for the Handicapped
internet: http://www.ccfh.org
e-mail: info@ccfh.org

Christian Council on Persons with Disabilities
mail: 7120 West Dove Court, Milwaukee, WI 53223
internet: http://www.ccpd.org/
email: info@ccpd.org
voice: 414-357-6672

"Advocating an evangelical perspective regarding people with disabilities and their part in God's world."

Christian Education for the Blind, Inc. and Bridge Christian Outreach
mail: 4200 South Freeway Drive Suite 702, Fort Worth, TX 76115 U.S.A.
fax: 817-920-0777
voice: 817-920-0444

Christian Foundation for the Blind in Thailand
internet: http://www.obs.org/cfbt_index.htm

Christian Services for the Blind International, Inc.
mail: P. O. Box 26, South Pasadena, CA  91031-0026
internet: http://www.socal.com/csb
e-mail: csb@socal.com
voice: 626-799-3935

Provides Christian materials in Braille and on cassette tape including periodicals such as Decision, Focus on the Family, Our Daily Bread, and Power for Living magazines (suggested donation). Also maintains a free lending library.

Christoffel-Blindenmission e.V.  [Christian Blind Mission International]
contact: C. Garms, Director of Overseas Services
mail: Nibelungenstrasse 124, D-64625 Bensheim  DEUTSCHLAND (Germany)
e-mail: cbm_Bensheim@compuserve.com
fax: +49 6251 131-165
voice: +49 6251 131-0

An international Christian ministry of education and rehabilitation services to the blind, deaf, and physically disabled, including eye and medical care and prevention of blindness.

ChronicNet
mail: The Robert Wood Johnson Foundation, College Road, P.O. Box 2316, Princeton, NJ  08543  U.S.A.
internet: http://www.chronicnet.org http://www.rwjf.org
voice: 609-243-5937

Provides support for families of children with chronic illnesses.

Citizens for Excellence in Education [CEE] -- A Division of National Association of Christian Educators
contact: Dr. Robert L. Simonds, President
mail: P.O. Box 3200, Costa Mesa, CA  92628
internet: http://www.nace-cee.org
e-mail: CEE4KIDS@aol.com
fax: 714-251-9466
voice: 714-251-9333

Founded as a "conservative" voice for parents, both those whose children are in public schools and those who homeschool.  Has publications on recent trends in public education, and information on grass-roots efforts to reform the public school system.

Council for Exceptional Children, The -- Division on Visual Impairments
mail: 1920 Association Drive, Reston, VA  20191-1589  U.S.A.
internet: http://www.cec.sped.org
fax: 703-264-9494
TTY: 703-264-9446
voice: 703-620-3660

Crossroads Christian Fellowship with Disabled Persons in NSW Inc.
mail: Snail Mail to: Crossroads NSW, Suite 2, 265-271 Pennant Hills Road, Thornleigh NSW 2120 AUSTRALIA
internet: http://www.pastornet.net.au/crossrds/
e-mail: xroads@pastornet.net.au
fax: 02 9875 4002
vocie: 02 9980 8911

Deafblind UK
mail: 100 Bridge Street, Peterborough  PE1 1DY  UNITED KINGDOM
e-mail: jackie@deafblind.demon.co.uk
fax: 01733 358356
TTY: 01733 358858
voice: 01733 358100

Diabetes Insipidus Foundation
mail: 4533 Ridge Drive, Baltimore, MD  21229  U.S.A.
voice: 410-247-3953

Dysautonomia Foundation, Inc.
mail: 20 East 46th Street, Room 302, New York, NY  10017  U.S.A.
fax: 212-68207625
voice: 212-949-6644

Supports persons with Familial Dysautonomia (FD).

Educators of Visually Impaired Preschoolers
mail: Oregon School for the Blind, 700 Church Street S.E., Salem, OR  97301  U.S.A.
voice: 503-378-3820

Epilepsy Foundation of America [EFA]
mail: 4351 Garden City Drive, Landover, MD  20785  U.S.A.
internet: http://www.efa.org
e-mail: postmaster@efa.org
fax: 301-577-2684, 301-577-4941
TTY: 800-332-2070
voice: 800-332-1000, 301-459-3700

European Union of the Blind [EBU]
mail: 58 Avennue Bosquet, 75007 Paris  FRANCE
fax: 470 53 821
voice: 470 53 820

Eye Patch Club
contact: Prevent Blindness America
mail: 500 East Remington Road, Schaumburg, IL  60173  U.S.A.
voice: 800-331-2020

This club is for children who have amblyopia and are having to patch their eye, along with their parents.  Members receive a kit and a supportive newsletter.  The kit contains ideas to help the classroom teacher and classmates to understand and accept the eye patch.

Family Voices
mail: P.O. Box 769, Algondones, NM  87001  U.S.A.
internet: http://www.ichp.ufl.edu/MCH-NetLink/FamilyVoices
fax: 505-867-6517
voice: 505-867-2368

A grass-roots lobbying organization focusing on families who have children with special needs.

Fiesta Educativa, Inc.
mail: P.O. Box 31518, Los Angeles, CA  90031
location: 3839 Selig Place, Los Angeles, CA  90031  U.S.A.
internet: http://www.fiestaeducativa.org
e-mail: fiestaed@aol.com
fax: 323-221-6699
voice: 323-221-6696

Support for families of disabled Hispanic persons, including statewide and regional conferences and "Fiesta Familiar", a home-based educational program.  Their conferences are in English and Spanish.

Foundation Fighting Blindness
mail: 11350 McCormick Road, Executive Plaza 1, Suite 800, Hunt Valley, MD  21031-1014  U.S.A.
internet: http://www.blindness.org
TTY: 800-683-5551, 410-785-9687
voice: 888-384-3937, 410-785-1414

Foundation for Nager and Miller Syndromes, The [FNMS]
mail: 1827 Grove Street #2, Glenview, IL  60025-2913  U.S.A.
e-mail: fnms@interaccess.com
fax: 847-724-6449
voice: 800-507-3667

FraXa Research Foundation
mail: P.O. Box 935, West Newbury, MA  01985  U.S.A.
internet: http://www.fraxa.org
e-mail: fraxa@seacoast.com
fax: 508-463-9985
voice: 508-462-1990

Supports research aimed at Fragile X Syndrome.

Glaucoma Foundation, The
mail: 33 Maiden Lane, New York, NY  10038  U.S.A.
interent: http://www.glaucoma-foundation.org/info
e-mail: glaucomafdn@mindspring.com
fax: 212-504-1933
voice: 800-452-8266, 212-504-1900

Large print book Doctor, I Have a Question, 4th Edition explains anatomy of the eye, different types of glaucoma, and current treatments.

Glaucoma Research Foundation
mail: 490 Post Street, Suite 830, San Francisco, CA  94102-1409  U.S.A.
internet: http://www.glaucoma.org
e-mail: info@glaucoma.org
fax: 415-986-3763
voice: 800-826-6693, 415-986-3162

Provides: telephone support network; eye donor network, family genetics project, meetings, newsletter, information over the telephone, and educational materials.

Gospel Association for the Blind
mail: P.O. Box 62, Delray Beach, FL  33447
fax: 407-274-4288 fax
voice: 407-274-9700

Provides some support for blind adults, including a summer camp/conference, Bibles, hymnbooks, etc. in braille, and a lending library of Christian books in braille and on tape.

Guide Dog Users, Inc.
mail: 14311 Astrodome Drive, Silver Spring, MD  20906  U.S.A.
e-mail: jcsheehan@smart.net
voice: 301-598-2131

Magazines: Dog Fancy, monthly on audio cassette; and Paw Tracks, quarterly on audio cassette about dog guide schools.

Handicappers Outreach for Christ, Inc.
internet: http://www.hofcmin.com/
e-mail: hofcmin@inficad.com

Handi-Vangelism
mail: 237 Fairfield Avenue, Upper Darby, PA  19082-2299
voice: 610-352-7177

Offers support counselling for parents who are grieving, ministry in hospitals, seminar for churches who want to understand disabilities.  Assists local churches in developing programs.  Runs a support group for parents of disabled children (in New Jersey only).  Has summer camps for disabled children in New York and Pennsylvania.

Hermansky-Pudlak Syndrome Network Inc., The
internet: http://www.medhelp.org/web/hpsn.htm

Home School Legal Defense Association [HSLDA]
contact: Betty Statnick, Special Needs Coordinator
mail: P.O. Box 3000, Purcellville, VA  20134
internet: http://www.hslda.org
e-mail: mailroom@hslda.org
fax: 540-338-2733
voice: 540-338-5600

Provides resources and legal support to homeschooling families, including the booklet Homeschooling Your Special Needs Child.  Has a network of regional special education consultants to whom parents can be referred.

In His Name Ministries, Inc.
internet: http://www.inhisname.org/project.html

Incontinentia Pigmenti International Foundation
mail: 30 East 72nd St, New York, NY 10021 U.S.A.
internet: http://imgen.bcm.tmc.edu/IPIF/
e-mail: ipif@ipif.org
fax: 212 452-1406
voice: 212 452-1231

International Association of Assistance Dog Partners
internet: http://www.iaadp.org/

International Association of Lions Clubs
mail: 300  22nd Street, Oak Brook, IL  60521-8842  U.S.A.
fax: 708-571-8890
voice: 708-571-5466

There are over 41,000 Lions Clubs in 180 countries.  Blindness is the main thrust of their philanthropy.  They sponsor a variety of projects, including free eye glasses, funds for scholarships and adaptive equipment, eye research, and many others.  Contact this main office for information on a chapter local to you.

International Council for Education of People with Visual Impairment
contact: William G. Brohier, President
mail: 37 Jesselton Crescent, 10450 Penang  MALAYSIA
e-mail: brohler@pc.jaring.my
fax: 60-4-228-9357
voice: 60-4-229-0933

New elections were due to be held in August of 1997.  This is the most recent contact information available.  Contact ONCE (below) if this contact becomes ineffective.

International Monovision Association
mail: c/o Brian Swart - Executive Director, P.O. Box 40127, Denver, CO 80204-0127  U.S.A.
internet: http://www.netgrafx.com/monovision
e-mail: oneeye@usa.net

Support and information for persons with one functional eye.

International Society on Metabolic Eye Disease
mail: 1125 Park Avenue, New York, NY  10128  U.S.A.
fax: 212-360-7009
voice: 212-427-1246

J A F Ministries, Inc.  [Joni & Friends]
mail: P.O. Box 3333, Agoura Hills, CA  91301
internet: http://www.jafministries.com
e-mail: jafmin@jafministries.com
fax: 818-707-2391
voice: 818-707-5664

Seminars for churches on serving the disabled; retreats for families with a disabled member; missionary trips (with disabled people both going and being ministered to); resource data base.  Their newsletter is available on audio cassette.

Joubert Syndrome Parents-in-Touch Network
mail: 12348 Summer Meadow Road, Rock, MI  49880  U.S.A.
e-mail: joubert@match.org
voice: 906-359-4707

Katlyn's Hope, Inc.
mail: 303 South Elm Street, Wellington, KS  67152  U.S.A.
internet: http://www.idir.net/~khope/
e-mail: khope@idir.net
voice: 316-326-6118

Serving deafblind children and their families.

Kniest Syndrome Group
mail: 1003 Newhall Drive, Faribault, MN 55021
internet: http://www.kniest.org/ksg.htm
e-mail: Info@kniest.org
voice: 507-232-6911

Latin American Union of the Blind [ULAC]
contact: Braille Foundation of Uruguay
mail: Durazno 1772, Montevideo 11200  URUGUAY
fax: 598-2-40 07 89
voice: 598-2-49 59 43

Lawrence-Moon-Bardet-Biedl Network
internet: http://www.geocities.com/HotSprings/Spa/1761/

Learning Disability Association of America [LDA]
mail: 4156 Library Road, Pittsburgh, PA  15234  U.S.A.
internet: http://www.ldanatl.org
e-mail: ldanatl@usaor.net
fax: 412-344-0224
voice: 412-341-1515, 412-341-8077

Free pamphlets available on various issues, a bibliography, a newsletter.  Call for the number of a local chapter.

Leber's Links
internet: http://www.freeyellow.com/members4/leberslinks/index.html

LOOK - The National Federation of Families with Visually Impaired Children
location: UNITED KINGDOM
internet: http://www.look-uk.org
e-mail: webmaster@look-uk.org

Low Incidence Support Network [LISN]
contact: Exceptional Family Resource Center
mail: 99245 Sky Park Court #130, San Diego, CA  92123  U.S.A.
voice: 877-268-8252, 619-268-8252

Macular Degeneration International
mail: 2968 West Ina Road, Suite 106, Tucson, AZ  85741  U.S.A.
e-mail: tperski@aol.com
fax: 520-797-8018
voice: 520-797-2525

Provides listings of services, programs, and consumer products catalogs; informational newsletter (print and audio cassette); information on research projects for both juvenile and age-related macular degeneration.

March of Dimes Birth Defects Foundation
mail: 1275 Mamaroneck Avenue, White Plains, NY  10605  U.S.A.
internet: http://www.modimes.org
e-mail: resourcecenter@modimes.org
voice: 888-663-4637, 914-428-7100

Mephibosheth Ministry
internet: http://www.mephibosheth.org/

A non-profit organization, "developed to bring the Word of God to the physically and mentally challenged communities".

Micro & Anophthalmic Children's Society [MACS]
 mail: 1 Skyrmans Fee, Frinton on Sea, Essex CO13 0RN  ENGLAND
internet: http://www.macs.org.uk/welcome.html
e-mail: enquiries@macs.org.uk
voice and fax: (+44) (0)870-600-6227

Mothers United for Moral Support [MUMS]
contact: Julie Gordon
mail: 150 Custer Court, Green Bay, WI  54301-1243  U.S.A.
voice: 414-336-5333

Nationwide support group for parents and foster parents of children with disabilities.

Multihandicapped Blind Foundation, Inc.
mail: 1301 Dell Crest Lane, La Jolla, CA  92037  U.S.A.
e-mail: milton@cts.com
fax: 619-454-8078
voice: 619-459-8255

Support organization for parents of children who are multihandicapped and blind.

Nail Patella Syndrome Worldwide
mail: 1658 East Capitol Expressway Postal Mail Box #212, San Jose, CA 95121 U.S.A.
 internet: http://www.nailpatella.org

{Nail Patella Syndrome is also called Fong's Disease, Hereditary Onycho-Osteodysplasia ("HOOD") }

National Accreditation Council for Agencies Serving the Blind and Visually Impaired
mail: 15 East 40th Street, Suite 1004, New York, NY  10016  U.S.A.
fax: 212-683-4475
voice: 212-683-5068

Develops standards and administers a voluntary system of accreditation for agencies providing services to people who are blind and visually impaired.  Publishes self-study and evaluation guides.

National Association for Parents of Children with Visual Impairments [NAPVI]
mail: P.O. Box 317, Watertown, MA  02272-0317  U.S.A.
internet: http://www.spedex.com/NAPVI
e-mail: napvi@perkins.pvt.k12.ma.us
fax: 617-972-7444
voice: 800-562-6265, 617-972-7441

Nationwide support group.  Call for information on publications, local state chapters, and conventions.

National Association for Visually Handicapped [NAVH]
mail: 22 West 21st Street, 6th Floor, New York, NY  10010  U.S.A.
internet: http://www.navh.org
e-mail: staff@navh.org
fax: 212-727-2931
voice: 212-889-3141

Lending library, catalog of visual aids for sale, many informational pamphlets.  Counseling available at regional offices for individuals and family.  Most services are free to members.  Ask about the location of a regional office.

National Association of Radio Reading Services
mail: 3021 West 27th Terrace, Lawrence, KS  66047-3211  U.S.A.
fax: 913-841-9634
voice: 800-280-5325, 913-864-4600

National Association of State Directors of Special Education
mail: 1800 Diagonal Road, Suite 320, Alexandria, VA  22314  U.S.A.
e-mail: specialed@nasde.org
fax: 703-519-3808
voice: 703-519-3800

National Ataxia Foundation, The
 mail: 2600 Fernbrook Lane, Suite 119, Minneapolis, MN 55447 U.S.A.
internet: http://www.ataxia.org
email: naf@mr.net
voice: 612-553-0020

National Braille Association
mail: 3 Townline Circle, Rochester, NY  14623  U.S.A.
fax: 716-427-0263
voice: 716-427-8260

This organization provides educational forums for transcribers and transcribing services to braille readers.  NBA Bulletin, quarterly in braille and on audio cassette: tips on braille and tape transcribing.

National Center for Learning Disabilities
mail: 381 Park Avenue South, Suite 1420, New York, NY  10016  U.S.A.
internet: http://www.ncld.org
voice: 212-545-7510

National Challenged Homeschoolers Associated Network [NATHHAN]
mail: c/o Tom and Sherry Bushnell, 5383 Alphine Road S.E., Olalla, WA  98359
internet: http://www.nathhan.com/
e-mail: NATHANEWS@aol.com
fax: 253-857-7764
voice: 253-857-4257

Support, including magazine NatHHAN News and resource guide, for parents homeschooling exceptional children.

National Coalition for Deaf-Blindness
mail: Perkins School for the Blind, 175 North Beacon Street, Watertown, MA  02172  U.S.A.
fax: 617-972-7334
voice: 617-924-3434

Advocacy and information to consumers and professionals.

National Council of Private Agencies for the Blind and Visually Impaired
mail: 16625 Grand River Avenue, Detroit, MI  48227  U.S.A.
voice: 313-272-3900

Members are chief executive officers of private, nonprofit organizations that serve people who are blind or visually impaired.

National Down Syndrome Congress
mail: 1605 Chantilly Drive, Suite 250, Atlanta, GA  30324  U.S.A.
internet: http://www.members.carol.net/ndsc
e-mail: ndsc@charitiesusa.com
fax: 404-633-2817
voice: 800-232-6372, 404-633-1555

National Down Syndrome Society
mail: 666 Broadway, New York, NY  10012  U.S.A.
internet: http://www.ndss.org
e-mail: info@ndss.org
fax: 212-979-2873
voice: 800-221-4602, 212-460-9330

National Easter Seals Society
mail: 230 West Monroe Street, Suite 1800, Chicago, IL  60606  U.S.A.
fax: 312-726-4258
voice: 312-726-6200

National Fathers' Network [NFN]
mail: Kindering Center, 16120 N.E. Eighth St., Bellevue, WA  98008-3937  U.S.A.
internet: http://www.fathersnetwork.org
e-mail: jmay@fathersnetwork.org
voice: 206-747-4004 x218

Advocates for fathers and families of children with disabilities.  Their DADS Newsletter is written by fathers of children with disabilities.

National Family Association for Deaf-Blind [NFADB]
mail: Helen Keller National Center, 111 Middle Neck Road, Sands Point, NY  11050-1299  U.S.A.
fax: 516-944-7302
TTY: 516-944-8637
voice: 800-255-0411 x275, 516-944-8900

National Federation of the Blind [NFB]
mail: 1800 Johnson Street, Baltimore, MD  21230  U.S.A.
internet: http://www.nfb.org
voice: 410-659-9314

Organization for visually impaired people and their supporters.  Has specialized divisions and several newsletters.  Call for information on a local chapter.  Their program "Newsline for the Blind" gives persons access to national newspapers via touch tone telephone.

National Foundation for Ectodermal Dysplasias
mail: P.O. Box, Mascoutah, IL  62258-0114  U.S.A.
internet: http://www.nfed.org
fax: 618-566-4728
voice: 618-566-2020

National Fragile X Foundation
mail: 1441 York Street, Suite 303, Denver, CO  80206  U.S.A.
e-mail: natlfx@aol.com
fax: 303-333-4369
voice: 800-688-8765, 303-333-6155

Provides: advocacy, free telephone consultation, newsletter, educational resources, local chapters, medical and genetic referrals, and conferences.

National Head Injury Foundation, Inc.
mail: 1776 Massachusetts Avenue N.W., Suite 100, Washington, DC  20036-1904  U.S.A.
voice: 800-444-6443, 202-296-6443

National Hemophilia Foundation
mail: 110 Green Street, Suite 303, New York, NY  10012  U.S.A.
internet: http://www.hemophilia.org
e-mail: nhfofnyc@aol.com
fax: 212-966-9247
voice: 888-463-6643, 212-219-8180

The N.H.F. is dedicated to the cures of inherited bleeding disorders and the prevention and treatment of their complications, through education, advocacy, and research.

National Hydrocephalus Foundation, Inc.
contact: Ann Liakos, Executive Director
mail: 1670 Green Oak Cirlce, Lawrencevill, GA  30243  U.S.A.
e-mail: Ann_Liakos@atlmug.org
fax: 770-995-8982
voice: 770-995-9570

Membership includes Hydrocephalus Research magazine.

National Industries for the Blind [NIB]
mail: 1901 North Beauregard Street, Alexandria, VA  22311  U.S.A.
internet: http://www.nib.org
e-mail: ctasca@nib.org
voice: 703-998-0770

Association of workshops which employ adults with visual impairments.

National Keratoconus Foundation [NKCF]
mail: Cedars Sinai Medical Center, Burns and Allen Research Institute, Davis Research Building D-5069, 8700 Beverly Blvd., Los Angeles, CA  90048  U.S.A.
internet: http://www.csmc.edu/nkcf
e-mail: nkcf@csmc.edu

National Marfan Foundation
mail: 382 Main Street, Port Washington, NY  11050  U.S.A.
internet: http://www.marfan.org
e-mail: staff@marfan.org
fax: 516-883-8040
voice: 800-862-7326, 516-883-8712

National Organization for Persons with Albinism and Hypopigmentation [NOAH]
mail: 1530 Locust Street, Suite 29, Philadelphia, PA  19302-4415  U.S.A.
internet: http://www.albinism.org
e-mail: webmaster@albinism.org
voice: 800-473-2330, 215-545-2322

National Organization for Rare Disorders [NORD]
mail: P.O. Box 8923, New Fairfield, CT  06812-8923  U.S.A.
internet: http://www.rarediseases.org
e-mail: orphan@rarediseases.org
fax: 203-746-6481
voice: 800-999-6673, 203-746-6518

Maintains a large database on rare and "orphan" diseases.  There is a minimal charge for search results.  Membership dues entitle one to their newsletter on research and "orphan" drugs.

National Organization on Disability
mail: 910 Sixteenth Street N.W., Washington, DC  20006  U.S.A.
e-mail: ability@nod.org
fax: 202-293-7999
TTY: 202-293-5968
voice: 202-293-5960

National Parent Network on Disabilities
mail: 1727 King Street, Suite 305, Alexandria, VA  22314  U.S.A.
internet: http://www.npnd.org
e-mail: npnd@cs.com
fax: 703-836-1232
voice and TTY: 703-684-6763

This is a coalition of organizations and seeks to represent all disabilities as a presence and national voice.

National Pemphigus Foundation, The
internet: http://www.pemphigus.org/k_tenner-eyeshaveit.htm

National Retinitis Pigmentosa Foundation
mail: 11350 McCormick Road, Suite 800, Hunt Valley, MD  21031-1002  U.S.A.
TTY: 800-638-5683
voice: 800-638-2300 voice, 410-225-9400

Public education programs, supports research into RP, local affiliates, referral and donor programs.  Fighting Blindness News is their publication on retinitis pigmentosa, in braille, audio cassette, and large print.

National Retinoblastoma Parent Group
mail: 110 Allen Road, Bow, NH  03304  U.S.A.
voice: 603-224-4085

National Technical Assistance Consortium for Children and Young Adults who are Deaf-Blind [NTAC]
internet: http://www.tr.wou.edu/ntac

National Vitiglio Foundation
mail: 611 South Fleishel Ave. Tyler, TX 75701 U.S.A.
internet: http://www.nvfi.org/menu.htm
e-mail: vitiligo@trimofran.org
fax: 903-525-1234
voice: 903-531-0074

Norwegian Association For Albinism [NFFA]
internet: http://home.telia.no/albinisme/

Perspectives Network, The
mail: P.O. Box 1859, Cumming, GA  30028-1859  U.S.A.
internet: http://www.tbi.org
e-mail: dktaylor@tbi.com
fax and voice: 770-844-6898
voice: 800-685-6302, 334-639-5037

Supports survivors of brain injury.  Individual subscription is $12 per year and includes peer communications networks, brochures, library and film archives, and workshops.

Prader-Willi Syndrome Association of the U.S.A.
mail: 2510  South Brentwood Blvd., Suite 220, St. Louis, MO  63144  U.S.A.
internet: http://www.athenet.net/~pwsa-usa
e-mail: pwsausa@aol.com
fax: 314-962-7869
voice: 800-926-4797, 314-962-7644

Prevent Blindness America
mail: 500 East Remington Road, Schaumburg, IL  60173  U.S.A.
voice: 800-331-2020

Their "Eye Patch Club" provides support for children who are patching an eye to correct amblyopia.  Members receive a newsletter and ideas on helping schoolmates understand.

Prevent Blindness in Premature Babies
mail: P.O. Box 44792, Madison, WI 53744-4792 U.S.A.
internet: http://www.rdcbraille.com/pbpb.html
e-mail: prevent@execpc.com
fax: 608-257-4143
voice: 608-845-6500

Pseudotumor Cerebri Support Network
mail: 6632 Kennington Square South, Pickerington, OH  43147  U.S.A.

Pseudoxanthoma Elasticum International, Inc.
mail: 23 Mountain Street, Sharon, MA  02067  U.S.A.
internet: http://www.med.harvard.edu/programs/PXE/
e-mail: pxe@tiac.net
voice and fax: 617-784-3817

Puerto Rico Deaf-Blind Parents Association
mail: Box 6616 Santa Rosa Unit, Bayamon, PR  00621-9006 U.S.A.
voice: 809-782-4475

R. P. Fighting Blindness Foundation
mail: P.O. Box 304, Ken Town 5071, South Australia  AUSTRALIA
internet: http://www.span.com.au/span/blindness
fax: 08-8363-0909
voice: 08-8362-1111

Resources for the Blind
location: PHILIPPINES
internet: http://www.blind.org.ph/index.html

Rest Ministries
mail: PO Box 502928, San Diego, CA 92150
internet: http://www.restministries.org/
e-mail: rest@restministries.org
voice: 888-751-7378, 858-486-4685

Resources and support for Christians dealing with chronic illness or chronic pain. They have many helpful ministries.

Retinitis Pigmentosa International
mail: P.O. Box 900, Woodland Hills, CA  91365  U.S.A.
internet: http://www.familyvillage.wisc.edu/lib-retp.htm
fax: 818-992-3265
voice: 818-992-0500

Retinoblastoma Parent Support Board
internet: http://www.dreamscape.com/kangas/support.htm

Rod Monochromasy, Achromatopsia and/or Cone Dystrophy Support Group
contact: Frances Futterman
mail: P.O. Box 214, Berkeley, CA  94701-0214  U.S.A.
internet: http://www.achromat.org
e-mail: Editor@achromat.org
voice: 510-540-4700

Septo-Optic Dysplasia/Optic Nerve Hypoplasia Support Group
internet: http://members.tripod.com/~roses8/index.html

Sound of Sight
mail: 840 South Sheridan Blvd., Denver, CO  80226
internet: http://www.redwhiteandblue.org
e-mail: phil@redwhiteandblue.org
voice: 888-936-0001; 303-936-2188

Computer support for Christians.  The "Electronic Church" seeks to provide fellowship and discussion opportunities for visually impaired Christians (e-mail: echurch-l@netcom.com). Ask about free homepages are available for visually impaired Christians who want to share their testimony.

Spina Bifida Association of America
mail: 4590 MacArthur Blvd. N.W., Suite 250, Washington, DC  20007-4226  U.S.A.
internet: http://www.infohiway.com/spinabifida
e-mail: spinabifda@aol.com
voice: 800-621-3141, 202-944-3285

Stroke of Love Ministries, A
mail: 17575 Lake Azalea Ave., Baton Rouge, LA  70817  USA
internet: http://www.premier.net/~good4man/
e-mail: good4man@premier.net
voice: 800-730-2356

Help in overcoming and dealing with catastrophic illness, and consultation with churches on being "handicap-friendly".

Stuttering Foundation of America
mail: P.O. Box 11749, Memphis, TN  38111-0749  U.S.A.
internet: http://www.stuttersfa.org
e-mail: stuttersfa@ao